It is time to bring some visibility to Auto-Immune Diseases. Opportunities to educate and bring awareness are few and far between. How do we bring about opportunities to spread the word about Auto-Immune Diseases? I would love to hear your ideas!
These diseases are very complex and misunderstood. The symptoms over lap and it can take a very long time and a dedicated team of Dr's to determine the correct diagnosis and treatment. In the case of my Rheumatoid Arthritis finding credible information was difficult. There is a lot of garbage out there and even more false and misleading claims of cures for RA. How do we get credible information out there? The commercials that are on television make me sick, they make it look like this disease is easy treated and patients who take it get their lives back. Sadly, this is not the reality many RA patients live with.
As I have mentioned before I found and love the RAWarrior site and then other sources for information have been Webmd, John Hopkins, The Cleveland Clinic etc. Now these are wonderful and informative sites BUT they are not Canadian. Things work differently here in Canada and it would be nice to have information that is relevant to the Canadian experience. We have different procedures, different access to testing, different medications etc. Has anybody else experienced this? Are you aware of sites (other than the Arthritis Society) that are Canadian?
I look forward to hearing your thoughts and suggestions :)
© 2011 Rhonda
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